SystmOne - How to record patient dissent to share data with the SIDeR Care Record

Background

The SIDeR programme operates under the information governance principle of sharing data with authorised users only for direct patient care, compliant with the Data Protection Act 2018.

Patients have the right to object to their data being shared, and across Somerset that objection is considered and noted, but data is still shared according to the principle listed above. In Dorset, patient objections can in some circumstances lead to their data not being shared with the local shared care record, and as we are linking up Dorset patient records with the Somerset Shared Care Record we are enabling those patient records to not be shared.

The following information is for patients who are registered at a Dorset-based GP only.
Please speak to your Information Governance lead if you have any queries.

How to record that a patient has dissented from sharing their data with SIDeR

When a Dorset patient has made an informed decision that they do not with their data to be shared with the shared care record, the GP practice will need to record this in the patient’s record. This is done by applying the appropriate coded entry to the patient record:

416409005 | Refused consent for upload to local shared electronic record (XaKRw)

1. Navigate to the patient record.
2. Click on the icon to enter a new entry.
3. In the search bar, type in the SNOMED code, or the term, and select it from the list. Click OK.
4. Follow your local guidance around management of the new coded entry, problem status, summary status.
5. Click OK and the status will now appear in the patient’s Read Code Journal.

How to record that a patient who had formerly dissented, now consents to sharing their data with SIDeR

When a Dorset patient has changed their mind about sharing their data with the local shared care record, after previously deciding that they did not want to share data, their preferences can be updated by applying the appropriate coded entry to the patient record using the process described above.

417528008 | Consent given for upload to local shared electronic record (XaKRv)